Or, how I spent my Thanksgiving Vacation.
Hey peeps! I hope you had a lovely Thanksgiving! Did you miss me? I’ve missed you. As you might guess, this has not been my favorite Thanksgiving holiday. I spent a week in the hospital after spending two weeks at home feeling extremely sick, and not knowing why.
That was the scary part. The good news is, I’m in Boston, where if you have to get sick, at least you’re in the right place. The other good news is that the syndrome that I have, while very scary, debilitating, and in rare cases potentially life-threatening, usually resolves completely over time. In my case, the treatment involved a week in the hospital, five IV transfusions, and one blood transfusion.
On top of all that, I’m a statistical outlier! This syndrome affects one in 2 million people every year, so I was a celebrity on the neurological floor at Tufts Medical Center. <sarcasm> Forget mundane things like stroke, brain cancer, aneurysm – this one walks in maybe once a year, and on Match Day, no less! </sarcasm>
Seriously, everyone wanted to see me. I think they were drawing straws outside my room to see which medical students would get to come in with the attending. They even wanted me to be the test subject for a Match Day neurological conference headed by one of the top doctors in the field. All I could think of was the medical lecture scene from Young Frankenstein (yeah… no).
I have tried to move my eyes, wiggle my toes, hold my hands up, stick my tongue out, and other fun things that test my central neurological system so many times, I’ve lost count. We took to calling them Neuro Parlor Games, hence the title of this post. Don’t get me wrong, I am grateful to the staff and especially the nurses that took such great care of me. And after two weeks of not knowing what was happening and why, it was a great relief to have a diagnosis and prognosis put to my condition.
And as you know from when I was diagnosed with cancer eight years ago, I tend to make fun of things that scare me, which held me in good stead while I was in the hospital. The nurses and I had lots of fun, if you can believe it. Eevery time I’d get up to move around in my hospital johnny, I’d say to the nurse “Oh, you’re getting to see the better side of me!” Or threatening to do walker marathons around the floor. Or telling my nurse, when he said he was going straight to hell, that I’d save him a seat at the bar. And hey – I lost 11 lbs. thanks to this, so I have running room for the holidays! Look for the positives, right?
In all earnestness, the greatest gift through this entire ordeal was my husband and my family. Larry was there for me at every step and I can’t ever express my gratitude enough to him. I know this was even more frightening for him than it was for me. He brought me the stuffed bear, Belle, that my father gave to me when I was a teenager to cuddle with.
Needless to say, I haven’t been able to do any sewing for the past several weeks. Once my vision resolves (double vision was my fist symptom), I hope to get back into the sewing room and start working on a jacket from the bouclé that I bought in Paris.
So, that’s what I’ve been up to. Sorry to have gone off grid for so long. But I will get back to normal! And I will be sewing soon. There’s lots of exciting stuff that’s happening right now outside of all of my adventures. I’ll fill you in on that in the next blog post. In the meantime…